Sunday, May 30, 2010

Advice From The Kidney Doctor

In this article of Be Healthy, Be Happy, I’d like to discuss an issue that comes up every day in the dialysis center: fluid restriction. There is no doubt that fluid intake is the most important determinant of weight gain between one session of hemodialysis and the next, particularly in patients with minimal urine output. However, we must be careful not to neglect the importance of dietary sodium intake as well. Patients drink for one of two reasons: thirst, and because they ‘feel like a drink’ – for example, social drinking. It is very difficult for a conscious patient to ignore thirst, and severe thirst will drive a patient to find fluid wherever they can. When patients do this, it is not because they are ‘mad’, ‘totally non-compliant’ or ‘too stupid to understand the importance of fluid restriction’ – it is because it is nearly impossible to ignore such a strong physiological stimulus. The over-riding stimulus to thirst is sodium concentration. Thus, we should concentrate on advising and helping dialysis patients to limit their salt intake, which will help limit thirst. Advising dialysis patients to restrict fluid intake when they have not had advice on how to limit their salt intake is inhumane, and is a waste of time. What other factors may impact thirst and fluid gains? A certain amount of sodium is delivered to each patient during each dialysis session. This may be prescribed by your nephrologist to help keep your blood pressure from dropping. If you’re caught in a vicious cycle of increasing fluid gains and increasing symptoms during rapid fluid removal on dialysis, talk to your nephrologist about your ‘sodium profile’ and how this can be changed to promote less thirst. There’s also some evidence that ACE inhibitors, a certain class of blood pressure medication, can reduce thirst and weight gain in dialysis patients with habitually high inter-dialytic weight gain and fluid overload.

In summary, a low sodium diet with advice to drink only when thirsty has been shown in clinical trials to significantly limit weight gains. The hard part then becomes the practical difficulty of persuading patients to limit dietary sodium intake. The high sodium content of many processed foods means that simply avoiding salt at the table and in cooking will not be enough to achieve these effects. However, any reduction in salt intake is likely to have a beneficial effect in the right direction. Talk to your dietician about the possible sources of sodium in your diet, and ways to lower it. And then maybe you won’t raise as many eyebrows when you get on the scale!

Dr. Christopher Caputo
Queens Nassau Nephrology Services

Friday, May 28, 2010

Finally... Photos From The 2010 Long Island Kidney Walk



Hi everyone... yes, finally I have posted some photos of this year's Kidney Walk... I arranged the photos into a slideshow video but there was some technical difficulties with Google and Blogger with getting videos uploaded to the Blog... things have been fixed, at least for now... if there seems to be any future problems with the slideshow, I will repost the photos individually... I hope you enjoy the images... as you will see, it was a really fun day for everyone...

I am also providing a link to where I have the same photos from the slideshow stored online at my picasa web album... this is because the quality of the photos in the slideshow seem a bit diminished... I guess this comes from the video processing done by Google... the quality of the pre-processed photos are better and you can see them at a larger size... Here is the link below:


by KMJ & Jody Gardener-Jones


Monday, May 24, 2010

And We Walked...

Yes we did walk... many of us, walking as one...

Yesterday's NKF Long Island Kidney Walk at Hofstra University in Hempstead, Long Island was fantastic. All the weather forecasts spoke of rain for the day and there was none... we even got peeks of sunshine on a cloudy but great day. The 'Be Healthy Happy' team was in the place- 65 walkers strong and representing to the fullest... For sure, all the teams present were looking good... No doubt, it was a wonderful experience for everyone...

I would like to thank the team members very much for their paricipation and support, as well as all those who sponsored and supported the team... the 'Be Healthy, Be Happy' team would be nothing without you guys... and may we do it even better next year...

Stay tuned for upcoming posts with many photos and videos of the day's events...

by KMJ and Jody Gardener-Jones

Sunday, May 23, 2010

People Feel Best...

It was once related to me that- "People feel best when they are united and moving together for a good cause". Surely, today's Kidney Walk which will take place later this morning is a good cause- more so, a great cause. I trust that everyone will be there united and moving together... and yes- FEELING THEIR BEST. May we be blessed with a fun-filled, successful event.

by KMJ

Friday, May 21, 2010

Understanding The Dialysis Patient

So you have to have dialysis. How did this happen?  Why did it happen to me?  Iʼm sure that these are
some of the questions you have asked yourself. As a society we tend to overindulge. Because of this overindulgence, it has affected our health. We are overweight with hypertension and diabetes.
Hypertension is a disease that is called the silent killer. Unless you get regular medical checkups
you may not know you are hypertensive until it is too late. Hypertension affects every bodily system
and the kidneys are no exception. You find yourself in the hospital having to get a catheter because
your kidneys have stopped working. Dialysis???  What is dialysis you are asking yourself? Dialysis
is something you will need for the rest of your life. It is the only thing that is going to keep you alive
other than having a kidney transplant.  And who knows when that will happen. The kidneys work as
our bodyʼs cleaner. They help to get rid of the toxins and wastes in our system. They help get rid of
fluid. They also help regulate:
   • erythropoietin, or EPO, which stimulates the bone marrow to make red blood cells
   • renin, which regulates blood pressure
   • calcitriol, the active form of vitamin D, which helps maintain calcium for bones
      and for normal chemical balance in the body

Compliance???  What does that mean???  It means to follow the rules. When it comes to dialysis,
compliance is very important. You have to monitor what you eat and drink. Some people think that
it doesnʼt matter what they eat or drink, I will go to dialysis and it will clean me out. Yes dialysis will take care of it, but it canʼt take off all the excess fluid because you will cramp, your blood pressure
will drop. Your body is a wonderful machine but it canʼt be abused. As the saying goes, your body is
your temple.  And you should treat it as such. You eat and drink too much and it will eventually affect
your heart. What do the kidneys have to do with my heart???  All the extra fluid and toxins have no
where to go so it affects all your other organs and something has to give. I have seen too many
patients that are not compliant and they wind up in the hospital with Congestive Heart Failure and
other ailments. Every time they come back to dialysis you can see that they are not the same, like
the life has been taken out of them.  And if they go to the hospital too many times because of
non-compliance their life will be cut very short.

People think that when they are on dialysis that their life if over. It is not!!! It is just another chapter
in your life. You can still do things you have always done but maybe in a different way. Or maybe
you have to try different things to keep your life a fulfilled one. Life is not over, just ask your
family. Iʼm sure they want you around for a long time and you can be if you just take care of
yourself. You can teach your family, especially children, that they should do things now to take
care of themselves so they donʼt wind up having to have dialysis.  And children learn by example.
So if you start eating healthy and acting healthy this will help them in the long run. We have to
stop the cycle of abuse to our body and teaching your children will help. Hopefully, they wonʼt
have to go through what you have gone through.

by Catherine Heed, LPN

Thursday, May 20, 2010

The Lighter Side Of Dialysis

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by KMJ

Sunday, May 16, 2010

Busy, Busy, Busy...

Hi everyone...

I would like to apologize to my visitors for the infrequent posts during the past couple of weeks. I have been very busy preparing myself and the 'Be Healthy, Be Happy' team for the upcoming NKF Long Island Kidney Walk taking place Sunaday, May 23, 2010 at Hofstra University in Hempstead, NY. I will do my best to do better with new posts during this last week of preparations and will surely be back on track with the blog after the Kidney Walk is over.

I want to thank everyone who visit my blog and I hope that the experience is educational and entertaining. I welcome your comments and critiques as they help me provide a better blog for my readers. I also encourage those who visit the blog and like what they see, to sign up as a follwer of the blog. This helps me to attract more attention and sponsors in the future, which in turn enables me to be able to pursue other avenues of enlightening others about and helping others with kidney disease.

I thank you all for your support and I hope to see many of you at the upcoming Kidney Walk.

by Jody Gardener-Jones

Thursday, May 6, 2010

Fluid Control For Those On Hemodialysis

The goal of fluid restriction is to help you feel comfortable before, during and after your dialysis sessions. Even though dialysis gets rid of excess fluid and waste in the body, it is not as effective as healthy kidneys. Why? Healthy kidneys work all the time—24 hours a day, 7 days a week. Most people on hemodialysis get treatments three times a week for about three or more hours at a time. This means, in the days between your dialysis treatments, your body holds on to excess fluid and waste your kidneys cannot remove.

Going over your recommended fluid allowance can lead to too much fluid building up in your body between treatments. This build up causes swelling and increases your blood pressure, which makes your heart work harder. Too much fluid can build up in the lungs, making it difficult for you to breathe.

Hemodialysis removes fluid as the blood is filtered through the dialysis machine. However, there is a limit on how much fluid can be safely removed during a dialysis session. If you exceed your fluid allowance, more fluid must be removed. Your body may not be used to having so much fluid removed at once. Some people experience muscle cramping during dialysis when they gain too much fluid weight. Taking out a lot of fluid can also cause a drop in blood pressure, which can leave you feeling nauseated, dizzy and weak after the treatment. Sometimes, an extra dialysis session may be required to remove all the extra fluid.

by Jody Gardener-Jones (from davita.com)

Wednesday, May 5, 2010

Dialysis Diet

Wastes in the blood come from food and liquids that are consumed. People on dialysis must adhere to a dialysis diet to cut down on the amount of waste in their blood. Following a dialysis diet may also bolster kidney function and delay total kidney failure.

A dialysis diet is one that is low in sodium, phosphorous and protein. A dialysis diet stresses the importance of consuming high-quality protein and limiting fluids. Some dialysis diets may also call for limited potassium and calcium. Every person is different, and therefore, a dietician will work with each patient to come up with a dialysis diet that is tailored to his or her needs.

by Jody Gardener-Jones

Monday, May 3, 2010

The 3rd Annual Long Island Kidney Walk

The 3rd Annual Long Island Kidney Walk will be held on May 23, 2010 at Hofstra University, in Hempstead, NY.

Join us, the 'Be Healthy, Be Happy' team. Together, we are going to make a difference in the kidney care community.

Can't wait to see you out there!

by Jody Gardener-Jones